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Aug 19, 2013

Taking Care of Siblings

Krisa Winn

Most of the parents I speak with who are raising children with special needs are also raising children who are developing typically.  In terms of parenting, these moms (and dads) are dealing with more issues than the normal sibling rivalry and clash in personalities. In this post, I thought I’d focus on those other, very special children. 

Love--It is hard to demonstrate love to people who don’t reciprocate that love in return. This is a reality for many children who have brothers or sisters who can’t “pick up” on body language or social cues, or who recoil at physical touch.  Although it can be heartbreaking to observe your child being seemingly rejected by his or her sibling, it provides a real-life picture of what God has done for us. (See Romans 5:6-8). As parents, we can take these opportunities, and use them to share biblical truth with our children. 

Authors and speakers, Joe and Cindi Ferrini encourage families to “create an environment in the home where you treat each other kindly.” This sounds so simple, and yet when we allow love to filter our conversations and interactions, everyone benefits.  

Self Control--When it comes to developing the character quality of self-control and the subsequent discipline of children with special needs, parents need wisdom and discernment.  In the case of a child with ADHD, for instance, it is often difficult to determine what behavior is intentional and what is truly uncontrollable (or at least hard to control). One thing is certain; however, typically developing children have a strong sense of justice.  When their sibling seemingly “gets away” with something they would never get by with there’s going to be trouble in paradise!  In some cases, it may be necessary to have a behavior plan in place for the child with special needs, and to explain this plan to the other children in the home.  Being open and explaining that their sibling is being disciplined, just in a way that more appropriate to their needs, usually is enough to calm their worries about being treated unfairly.

Along those same lines, a friend of mine who has a child on the autism spectrum feels that it is very important to help a child with special needs develop a sense of responsibility and self-discipline.  Not only does this help circumvent learned helplessness, but it communicates to the other siblings that everyone in the family is doing what they can. If you'd like a tangible way to demonstrate how we all need each other and how each person in the family has an important role to play consider using the Inclusion Awareness Kit from CLCnetwork.  

Joy-- The Ferrinis point out that “caring for a child with special needs can be hard on a marriage, but don’t forget that it can be hard on your other children too.” Children pick up on things.  And with that in mind, it is important not to marginalize what your typically developing children may be experiencing or feeling. Talk to them individually about “how they’re doing;” share with them in age-appropriate ways the needs of their sibling; allow them the opportunity to spend time doing things they love, provide for counseling if necessary. Pray together, laugh together, and name things you are thankful for. These are all great ways to build up joy in the midst of stressful situations. 

The Ferrinis also encourage families to uncover things they can do together- for fun.  Maybe your family enjoys music or movies. Be intentional about building those activities into your family culture. At other times though, it’s good to find someone who can care for your child with special needs so that the rest of the family can spend time doing things that are often limited to them. It could be as adventurous as taking a trip down white water rapids, or as simple as spending a quiet evening at a special restaurant. Not only will you be having fun, but you’ll also be speaking volumes to your other children as you demonstrate your commitment to their happiness and well-being. 

In reading and talking to others, I’ve heard over and over again how growing up with a brother or sister with special needs has had positive effects--not negative. Many parents relate how caring and loving their typically developing children are towards “the least of these” outside their family circle, and how some have even chosen careers that allow them to work with children who have special needs or significant medical challenges.  However, some of you reading this article may still be in the stunned stage.  This isn’t the reality that you imagined when you planned your future, and you’re anxious beyond words. I hope that you will be encouraged and recognize that you don’t have to walk this journey alone. God still has a good plan you and for every single one of your children. 

-Krisa

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